Today is Rare Disease Day 2019 - Please meet some of the inspiring children and families battling the life threatening and life limiting, rare disease ROHHAD. Please watch the video... Link in my bio ??... The Awareness video was made with the help of @mo_freek and @jimmy_rich from #TeamDowney ... It has been created to help raise awareness so please share this today for the children as this is their #RareReality ... Please #ShareYourRare and #ShowYouCare #RareDiseaseDay #2019 #GoMadForROHHAD #MissionFindACure #RohhadAwareness